When I first started this blog, I was new to using a wheelchair. I had cauda equina syndrome in April 2012, which damaged the nerves to my left leg and saddle. It took me a year or two before I considered using a wheelchair but I'm so glad I did. It gives me the freedom to live a normal life and do most of the things I want to do. In this blog, I share my own experiences of being a part-time wheelchair user, in the hope that it will inspire and encourage other newly disabled people.
Tuesday, 19 January 2016
Dogs, bathrooms and pillow hats
The last dog I worked with was called Hazel. She was beautiful! Black lab puppy, gentle, with big brown eyes. Afterwards, while we were going through paperwork, she laid down next to my chair and fell asleep. I think we must have tired her out! I wish I'd thought to take a picture of her. I'd be quite happy to have a dog like her to work with.
This afternoon, I made the journey south, arriving at the hotel just after six. The room here isn't as good as last night's but I knew that before I came. Unfortunately, they don't have any wet rooms here, so I have to make do with a shower over bath. If ever you have to do the same, it's worth asking at reception for a non-slip mat. Staff don't always know that they have them, but they usually do.
My only disappointment last night was the absence of pillow hats. This has become a family tradition. Whenever we stay at a Premier Inn, we take a photo of one of us, wearing the cardboard cover from the pillows. They look rather like sailor hats. We did it once and it stuck. Last night though, there was no pillow hat to be found.
Tonight though, we're back in business! At first, I couldn't see it but it was hiding under the duvet.
Monday, 18 January 2016
Accessible hotel rooms
Well that's the first leg of the journey done. I've just had a lovely evening with my sister and her family and now I'm back in my hotel room.
I'm particularly fortunate that this hotel has wet rooms. I wish all hotels did. I know that my next one doesn't, so I'm going to enjoy tomorrow morning's shower and think appreciative thoughts.
Saturday, 16 January 2016
He will have a week off!
This house is much better. We're starting at the top and making it really disability-friendly, whilst hopefully looking like a smart, modern, family home, rather than an old-folks home or hospital. We've done the bathroom - converted it into a walk-in shower room, with a comfort-height toilet, beautiful rain shower and chrome grab rails. Having that done makes such a difference! I haven't had any slips, falls or jarring my back since it was finished. Hopefully within the next few weeks, the stairs and landing will be finished and we can get the stair lift installed. I'm really not great with stairs.
Unfortunately though, it'll be a while before we do the kitchen and that means I can't prepare meals independently at the moment. I'm alright with a light lunch or a bowl of cereal but not a proper meal. So before Neil went away, he made sure there were meals ready for me to reheat. He also got all the washing and ironing up to date. I appreciate that so much but I worry that even when he's going away, he's not getting a break from being a carer.
I'm hoping next week will be different! I'm going away from Monday to Saturday, leaving him home alone. I hope it will give him a week where he doesn't have to worry about me or do everything. The only downside is that he'll have to walk to work, so I hope it doesn't rain constantly.
As for me, I'm going to the Midlands for an assistance dog assessment day. I'm excited and really nervous, in equal measure. Then I'm going to London for a big education-technology conference. I'm looking forward to that so much and because he knows I'm going to be in a safe environment with food and drink available to buy and parking onsite and an accessible hotel room, he will have to just have a week off!
Saturday, 9 January 2016
A Bit Mucky
I got a bucket of hot soapy water (just Fairy) and a cloth and perched myself on the back ledge of the boot of the car. This is where I generally sit to dismantle my chair to put away. I kind of managed but it was way too much bending and I've got backache now. Next time, I'm going to do it on the back lawn, sitting on a waterproof travel rug.
I wiped all the metalwork down and that looks much better now. To get to the footplate and the castors, I had to put it in the boot of the car but of course, that means I had to be really careful about wringing the cloth out properly. I didn't want a car boot full of water!
The castors were really grim! Now I've cleaned them, the flashing lights are much clearer again. Also, the back wheels were quite muddy, not just on the tyres but around the rims. So I tried to give them a proper wash but it wasn't very successful because I was bending down and that hurt. Then I didn't think what I was doing and balanced it on my leg and now I've got a wet patch - lovely!
Finally, I gave the freewheel a clean, though that wasn't as bad as I expected. Then I left everything to dry off. Later, if my energy levels return, I'll check tyre pressures. Last time, I got taken by surprise and it nearly spoiled an afternoon out. That won't be happening again! Also, last time, we only did the back wheels, not the freewheel, so I'll check that too.
I think my biggest mistake was trying to do it at the wrong level. The floor would definitely be easier and less painful, as long as I can sit somewhere soft. Also, a stiff brush would be handy for doing the tyres and possibly a smaller bucket that would be lighter to carry.
Friday, 1 January 2016
Hills without help
Well, this morning, I wanted some exercise and Neil was busy (still in bed, asleep), so I decided to give it a go... and that got me thinking about hills.
The first challenge was getting up the ramp to the riverside path. Fortunately, this challenge presents itself at the beginning of the walk, when my energy levels are at their highest. I know that I couldn't propel myself all the way up it. It's too steep and too long. I figured the best option for me was to walk very slowly, using my chair for balance and support. I can only do this if I don't have a bag over the back of my chair, as that makes it tip backwards. Anyway, I did a kind of shuffle step up to the top, stopping for a couple of rests on the way.
I've got pictures of the next hill.
- check the surface before setting off (especially down hills)
- lean forward when going uphill
- lean back when going downhill





